Patient Reported Outcomes

Quality Measures

Guidelines  (Recommended Care) > Measures (Ideal Outcomes) > Patient Visit (Actual Outcomes) >  Axon Registry  (Data Overtime Informs Guidelines)

Learn about common Patient Reported Outcome (PRO) Scales and Tools used in neurology. Information is provided to assist in your implementation of PRO scales and tools in your practice.

Lidia V. Moura, MD
Insight and experiences of people with neurological problems should guide our work. PROMs [Patient Reported Outcome Measures] are the patient's unadulterated voice that helps us provide care more effectively and safely.

Lidia V. Moura, MD - AAN Member

“Patients and/or caregivers may have different goals or risk tolerances than the provider is aware of. For example, a patient and provider may agree that reducing the number of medications is a good direction to take, yet there may be several paths to choose from. Asking the patient what their desired outcome is may lead to a completely different medication reduction than the provider had in mind. The patient is more invested in succeeding with the treatment because he/she had input into the decision-making, which hopefully leads to better patient reported outcomes.”

Lisa Meunier, Epilepsy Advocate

Condition-specific Scales and Tools

DEMENTIA SCALES AND TOOLS

Geriatric Depression Scale

Lawton Instrumental Activities of Daily Living (IADL)

Neuropsychiatric Inventory-Questionnaire (NPI-Q)

HEADACHE SCALES AND TOOLS

HIT-6 Form

Migraine Disability Assessment Test (MIDAS)

PedMIDAS

EPILEPSY SCALES AND TOOLS

Quality of Life in Epilepsy

MULTIPLE SCLEROSIS SCALES AND TOOLS

Functional Assessment in Multiple Sclerosis (FAMS)

Review Agency for Healthcare Research and Quality (AHRQ) funded research on how to advance the collection of patient-reported outcomes through health information technology such as mobile applications and standardized data elements.

Planned Visits

Collection of PROM data can be easier when a practice utilizes a planned visit model. Use of a planned visit model may also result in improved patient satisfaction, improved self-management, as well as improved clinic productivity and reduced costs.